Zoo

We took Maegan to the zoo Saturday and she loved it. Her favorite was the giraffes because they came right up to you and you could give them crackers.

Maegan always has "zoned out" moment when we are outside. She gets into deep thought.

Then we went to Chuck E. Cheese. She freaks out when the commercials come on. She's addicted to the mouse.

The end of a long day.

Hard to keep up

It's so hard to keep up with Maegan's blog! Here are a few pics from last week when we went to the rodeo. She has been doing a great job potty training. She hasn't had any accidents in several weeks. Her diapers stay dry through the night and as soon as she wakes up she asks to go potty. She's too easy, so that means our next one will be our difficult one!

Maegan and Daddy watching the barrel racing. She liked the rodeo as long as she had popcorn or cotton candy. Tonight we were eating McDonald's. Yep, I cooked!! Maegan has turned into a bad eater. She likes to snack. She was playing with her food and talking. The next thing I know, she has the top part of her bun wrapped in her napkin and is rocking it like a baby and singing hush little baby! We cracked up. She looked at us like we were crazy.

I have to share with you a blog that was linked to my very good friend's blog whose family we met on our first trip to Guatemala.

http://audreycaroline.blogspot.com/

A woman shares how she and her family dealt with a very tragic event in their lives. She's such a strong woman, whose faith in God shines bright! It will truly touch your heart.

God is so GOOD!

Please take the time to read Trevor's latest blog! This is an example of how God works and when you let go and give Him your problems and worries, that he will take care of them. Good Luck Trevor, Melinda, Morgan, and Melinda's mom as you leave to continue your journey to AZ that God as set before you.

http://www.caringbridge.org/visit/trevortredaway


Heavenly Father, watch with us over your child Trevor, and grant that he may be restored to that perfect health which it is yours alone to give; through Jesus Christ our Lord. Amen.

Leah's B-day party

My pretty girl

Leah's birthday party at Chuck E. Cheese

Notice how Chuck's head is almost popping off. It's so embarrassing to take the boy in public.

Maegan liked the jet ski because it moved a lot.

Fake smile

Nanny had just as much fun as Maegan.

Both were mad cause the bike wasn't working.

Baby Kaden at Uncle Ervin & Aunt Bev's

Doesn't he have the prettiest eyes? He loved the water.

Maegan was not scared of the water at all. She'd be walking along the edge of the pool and just walk into the pool. I was a nervous wreck since watching the segment on dry drowning.

Trevor

Trevor has an appt. in AZ on June 21st!! Please continue to keep him and his awesome family in your prayers. As a parent, I don't know how Todd & Melinda are keeping it together, but they are a true example for us all! Never take life for granted and live every day to the fullest.

Garage Sale was a SUCCESS!

Maegan & Averi painting pretty pictures.

We now have a nice glittery kitchen floor!

Maegan & Grant got into the garage sale price stickers.

Since we had to get up REALLY early(uck) we just had a slumber party and everyone stayed at our house. Maegan enjoyed her first slumber party. It was a Dora marathon on t.v., we especially loved that.

Trevor update: As soon as Cook's Childrens Medical Center mails Melinda all of his medical records they can make their appointment in Scottsdale,AZ. Legally they have 30 to do this, but we're praying some gracious person gets it done sooner. They've already been waiting 1 week.

Dry Drowning

Brace yourselves, parents. We in the media have found another hazard to keep you up at night worrying about your kids. The phenomenon of “dry drowning” was highlighted on yesterday’s TODAY show; the episode featured the story of a 10-year-old boy named Johnny Jackson who died over an hour after he had been frolicking in a swimming pool. (“Dry drowning” can happen up to a full day after the person has aspirated a small amount of water.)

The child had walked home, spoken with his mother and taken a bath before complaining of sleepiness and going to bed. When his mother checked in on him later, she found him unresponsive, his face covered with a white spongy material.Like conventional “wet” drowning, “dry drowning” is a form of asphyxiation. It happens when a small amount of water gets in to the lungs and damages the tissue, causing the lungs to fill with water. As a result, the lungs are unable to deliver oxygen to the blood and, ultimately, the brain.

The warning signs of an impending “dry drowning” are extreme drowsiness, breathing problems and dramatic behaviour changes. Though “dry drowning” incidents are very rare, parents should keep the symptoms in the back of their minds and watch for them after a child has had near-drowning incident in a bath or pool or shown any other signs of having aspirated (rather than just swallowed) water.

Here is the link from the show that gives the symptoms & treatment:
http://www.msnbc.msn.com/id/24982210/

Triumph for Trevor!!

Maegan showing off her Triumph for Trevor support bracelet.

This is 3 year old Trevor Tredaway. In January of 2008, Trevor was diagnosed with Hypothalamic Glioma & it is inoperable. The tumor is in his nasal cavity, behind his right eye and around the hypothalamus.

The chemotherapy they had been giving Trevor has not affected the tumor. They have also found that the brain tumor has metastasized to a few spots in his spinal cord. Here is some info from his mom, Melinda:

the doctors want to start Trevor on a 3rd chemo drug with no known benefits in children. It is used to prolong life in adults with very aggressive brain tumors. The data on its effectiveness in children will not be available for 1-2 more years. Trevor is very sensitive to medications: i.e: after his first chemo treatment, his jaw pain was so severe that he couldn't swallow; he hallucinated after taking ativan; all of the nausea and vomiting. Frankly, chemo just scares me.

Melinda & Todd, Trevor's dad, have decided to try an alternative treatment:

We were given the name of another alternative treatment center in Scottsdale, Arizona that also sounds promising. Their type of treatment is given through IV for 3-4 hours per day for 8-10 weeks. The treatment center is called Envita. They said they normally don't treat someone as young as Trevor, but they seemed to think that he would benefit from the treatment. The fact that he already has a port is a plus because that is where they would administer the medicine. This clinic treats the whole body, not just the disease. They told me that detoxifying Trevor's body is of utmost importance. There is a nutritional approach to the treatment. The treatment is designed to break apart the tumor while restoring and improving the immune system. This prevents the tumor from metastasizing. One of the medications used is polymva, and another is 4nkt. The latter is 60 days away from FDA clinical trials. I'm not sure which on Trevor would be on. I heard about the clinic last night and called them today. The treatment time is shorter, and the cost is about $25,000 cheaper than at Burzynski. We are struggling with which clinic to go to. We have basically figured that we get one shot at an alternative treatment, financially speaking.

A fund has been set up for him:

Trevor Tredaway Fund

Citizens Federal Credit Union

P.O.Box 51070 Midland , TX 79710

We are also having a 4 family garage sale this weekend with all proceeds going to Trevor. If you are able to make a donation, the family will be forever grateful. Prayers are always welcomed and needed. You can keep up with Trevor's progress at:

http://www.caringbridge.org/visit/trevortredaway